Living with keratoconus and so long to A Cornered Gurl
This was originally published as an informative letter via A Cornered Gurl on Medium. I know some of you are writers and readers of the publication (on Medium only), so I am sharing it here as well. Hello to each and every one of you.
My optometrist diagnosed me with keratoconus at just the right time. Per my ophthalmologist and corneal specialist at the Duke Eye Center, it’s mild in both eyes with no scarring and no advanced hazing. I have a six-month follow-up to assess my status at that time and to have additional corneal images taken. At the beginning of next year, I’ll be fitted for scleral contact lenses. These will help to reshape the corneas in both eyes and continue to enhance my vision over time. This is a lifelong condition, there’s no cure — but using these methods will aid me in the future regarding my sight.
The best thing about getting this in my 40s is there’s a better chance of it not continuing to progress at a rapid rate and slowly easing up as long as I do what I need to. The follow-up in six months will determine if I’m headed in the right direction to keep me from having any invasive treatments or surgery.
My ophthalmologist showed me what corneal transplant surgery would entail by using the eye model in the exam room. Let’s just say, I truly don’t want to have to endure this surgical procedure. I would rather not walk down that scary road, thank you very much.
Not only was I given a great deal of information about my condition and what to do during these next few months to keep my vision on the up and up, I was also advised to get some Pataday eye drops to help with my allergies and keep me from rubbing my eyes when they itch.
At this point, I am relieved there is no cause for surgery or invasive treatments and I will continue to do what I can on this end to help my sight. This break away from A Cornered Gurl and a few other obligations allowed me time to rest and do other things that do not require my focus totally pressed upon, into, or on some technological device far more than I need to be.
I enjoyed it. I relished the lack of responsibility with these obligations and I wish to move forward with that. At this juncture, I am ceasing all publishing in A Cornered Gurl, indefinitely. I do not have the words to appropriately express how loved each of you as writers and readers of this publication are but I fully believe this is what I needed to show me I can no longer do what I used to.
The body has a way of making one aware when one needs to completely change one’s habits.
I am changing mine.
I will leave the publication up. It feels a bit jumpy to disable or delete it, especially when there are so many powerful, vulnerable, and expressive pieces of work here. If I published your work, I was delighted to. If you are featured in this publication, you are meant to be. If you were rewarded in any way, you deserved it.
Thank you . . . Thank you for coming along on this journey with me. Since ACG will be retired, I am deleting our Twitter account as well. A little over a year is really probably all I can stand of “true” social media.
For your time, mind, and eyes, I am grateful and appreciative and I wish all of you well.
Peace and blessings, beautiful people.
A Cornered Gurl via Medium and Twitter are the only two platforms I will no longer host or participate in; WordPress is home. I have to have a creative outlet and I’ll still be on Medium.